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the surgery is never going to happen

yannick-robin mirko written in his handwriting on sharpie from funeral home paperwork

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rare diseases

yannick-robin eike mirko

Jun 15, 20232 min read

Rare Disease Daily #22: 2-hydroxyethyl Methacrylate Sensitization + 2-Hydroxyglutaric Aciduria

yannick-robin eike mirko

Jun 15, 20234 min read

when faking a rare disease wins you a Tony Award

yannick-robin eike mirko

Jun 13, 20232 min read

Rare Disease Daily #21: 2,4-Dienoyl-CoA Reductase Deficiency

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yannick-robin, is a Manhattan, NYC-based Biawaisa/Yamoká-hu/Maorocoti multidisciplinary artist and activist with a rare disease.
He began working with nonprofits in 2020, most notably working for Imara Jones (one of TIME Magazine's 100 most influential people of 2023), owner of TransLash Media, where trans stories are centered in order to save trans lives. While under her wing, yannick-robin was nominated for a Webby Award as an associate and digital producer for the TransLash Podcast with Imara Jones, worked on The Anti-Trans Hate Machine: A Plot Against Humanity series as a producer and fact checker, and wrote obituaries for their TGNC siblings lost to violence in the United States and its Territories (more on this here). They have since then written for TalkDeath (read Racial Disparities and Discrimination in the Death Care Industry), focusing on Queer and BIPOC end-of-life preparations and equality, as well as making strides as a disability activist within the performance space, being Off-Broadway in the first TGNC Theatre Festival in the professions history, + being the first wheelchair user to perform in several iconic regional theatres of the US while advocating for accessibility for trans and disabled performers and continuing on with activism as a freelance writer and advocate/consultant. They were recently added to the University of Minnesota’s Tretter Transgender Oral History Project for his contributions to the progress for trans rights in death care and theatre. Now offering obituaries, death doulaship, and bereavement counseling for TGNC decedents and their families as well as trans people lost to violence, people with rare diseases, and the disabled.
for commissions, death care, speaking engagements and more, press the contact button.
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yannick-robin eike mirko is represented by Arise Artists Agency

© 2024 yannick-robin eike mirko

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