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![[image description]:
yannick-robin sits against a white wall, facing away from the camera in a puffly sleeved dress with a sparkly torso, taino face paint, and a vejigante mask on.](https://static.wixstatic.com/media/a89367_d3c11201c7ff4a09a9eecc24f9bc13ec~mv2.png/v1/fill/w_2350,h_1312,q_90,enc_avif,quality_auto/a89367_d3c11201c7ff4a09a9eecc24f9bc13ec~mv2.png)
![[image description]:
yannick-robin sits afront a keyboard and speaker, in taino face paint, staring blankly.](https://static.wixstatic.com/media/a89367_c048708e20c54dc8b3d5d5ce1b93bbdd~mv2.png/v1/fill/w_3035,h_1520,q_90,enc_avif,quality_auto/a89367_c048708e20c54dc8b3d5d5ce1b93bbdd~mv2.png)
![[image description]: yannick-robin sits criss-cross on Jasper, in a conference room where he is being recorded speaking on inclusivity within health care for people with rare blood diseases. The text next to them says, "yannick-robin eike mirko: community member with a Factor VII Deficiency".](https://static.wixstatic.com/media/a89367_cd7390f0f8a9434baeb65b836cc86e81~mv2.jpg/v1/fill/w_2264,h_1283,q_90,enc_avif,quality_auto/a89367_cd7390f0f8a9434baeb65b836cc86e81~mv2.jpg)
![[Image Description: a graphic made by NORD shows a ribbon displaying this is a Rare Community Spotlight, as well as my headshot, the NORD logo, the logo for celebrating 40 years of NORD, the hashtag PrideMonth along with the flag, and the following quote, "My experience navigating the health-care system for years as a trans patient prepared me for the rigorous self-advocacy necessary to navigate the system as a rare patient. In fact, it was my pursuit of gender-affirming health care that set me on my diagnostic odyssey."]](https://static.wixstatic.com/media/a89367_621181c405b44b599c29b8fb0fe42032~mv2.jpeg/v1/fill/w_1603,h_897,q_90,enc_avif,quality_auto/a89367_621181c405b44b599c29b8fb0fe42032~mv2.jpeg)
![[image description]:
a still shot from the short film, 'a series of revolutions', where a mural of a Vejigante shines beautifully from the sun, on a wall in Downtown Ponce, Puerto Rico.](https://static.wixstatic.com/media/a89367_95f395dbf80c4bb3898565e16165357a~mv2.png/v1/fill/w_1298,h_725,q_90,enc_avif,quality_auto/a89367_95f395dbf80c4bb3898565e16165357a~mv2.png)
![[image description]:
two images of yannick-robin sitting on a fire escape (one with book in hand staring into camera, the other without the book and he's facing away) overlay atop each other.](https://static.wixstatic.com/media/a89367_8d42ee29040a4f05ada3c48b2ddf89d5~mv2.png/v1/fill/w_3510,h_1965,q_90,enc_avif,quality_auto/a89367_8d42ee29040a4f05ada3c48b2ddf89d5~mv2.png)
![[image description]: yannick-robin rolls down a long winding road. there are duplicates of him in different places on the road and surrounding pavement. he is enjoying his way down, with arms up like wings.](https://static.wixstatic.com/media/a89367_f6f0b032afb04780a1e014005013fa4c~mv2.jpg/v1/fill/w_1079,h_669,q_90,enc_avif,quality_auto/a89367_f6f0b032afb04780a1e014005013fa4c~mv2.jpg)
![[image description]: yannick-robin sits center stage, script on lap, with director L Morgan Lee sitting at his left, and a line-up of stellar actors spread across the stage.](https://static.wixstatic.com/media/a89367_b5011873944a4f94a93fcf10bdabd896~mv2.png/v1/fill/w_2315,h_1735,q_90,enc_avif,quality_auto/a89367_b5011873944a4f94a93fcf10bdabd896~mv2.png)
![[image description]: This actor whirls in his wheelchair,
shimmies on his cane, quicksteps
on his feet. In the program,
they/he announce. Openly disabled.
Meet "Jasper, the Wheelchair,"
Meet "Gloria, the Cane."
I'm transfixed. His grace.
The ease with which his fellow
actors wield his weight
so that on his feet or in his chair
he's moving. Rhythm.
Magnetism. Attitude.
Nothing to fear but fear itself.
He's taken FDR's words to heart./
But not that iconic president's dictate:
No audience should se him wheeling.
or bowed and restricted in his chair.
That weakness
FDR could not overcome.
All of us salvaging. Our frailties,
anxieties, missing parts,
convinced we're at our best
when we hide. Our cracks.
Our scars. Our chasms.
In this play, can you
see yourself?](https://static.wixstatic.com/media/a89367_61eed7358b3c4c389e8cc15fd4af01ba~mv2.jpeg/v1/fill/w_1040,h_1740,q_90,enc_avif,quality_auto/a89367_61eed7358b3c4c389e8cc15fd4af01ba~mv2.jpeg)
![[image description]: yannick-robin sits at the drum kit during rehearsal for Mr. Holland's Opus. They're smiling, and wearing an outfit that makes them happy.](https://static.wixstatic.com/media/a89367_b140f5d752b44f0688470dd36a2cddf8~mv2.png/v1/fill/w_1080,h_1080,q_90,enc_avif,quality_auto/a89367_b140f5d752b44f0688470dd36a2cddf8~mv2.png)
![[image description]: yannick-robin plays Bobby Toti, holding a recently-played trumpet, sat beside Akron Watson [playing Mr. Holland] on stage during a scene in Ogunquit Playhouse's world premiere production of BD Wong's writing and directorial debut musical, Mr. Holland's Opus.](https://static.wixstatic.com/media/a89367_0d33e6ad73444648a6000396dc654785~mv2.jpeg/v1/fill/w_2000,h_1333,q_90,enc_avif,quality_auto/a89367_0d33e6ad73444648a6000396dc654785~mv2.jpeg)
![[image description]: an edited image shows two cut-outs of yannick-robin playing an electric guitar on stage, overlayed and in moody lighting. They riff to a Joan Baez song.](https://static.wixstatic.com/media/a89367_a82cb442e67e45ca948d706739d319a7~mv2.png/v1/fill/w_1080,h_1080,q_90,enc_avif,quality_auto/a89367_a82cb442e67e45ca948d706739d319a7~mv2.png)
![[image description]: yannick-robin sits in jasper, while playing a bright red Fender strat.](https://static.wixstatic.com/media/a89367_6f04f4d34b064ecbb001ac2cfd68c4db~mv2.jpg/v1/fill/w_1282,h_1929,q_90,enc_avif,quality_auto/a89367_6f04f4d34b064ecbb001ac2cfd68c4db~mv2.jpg)
![[image description]: yannick-robin plays Ricky Potts, playing the accordion on stage during a number in Princeton's McCarter Theatre production of Ride The Cyclone.](https://static.wixstatic.com/media/a89367_99c48f090ed14b6ab01ad38ef17688ca~mv2.jpg/v1/fill/w_2304,h_1537,q_90,enc_avif,quality_auto/a89367_99c48f090ed14b6ab01ad38ef17688ca~mv2.jpg)